Amyotrophic Lateral Sclerosis Assn, National Office in Washington, District of Columbia (DC)

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Amyotrophic Lateral Sclerosis Assn, National Office
Employer Identification Number (EIN)133271855
Name of OrganizationAmyotrophic Lateral Sclerosis Assn
Secondary NameNational Office
Address1275 K St Nw Ste 250, Washington, DC 20005-6823
ActivitiesDiscussion groups, forums, panels lectures, etc.
SubsectionCharitable Organization
Ruling Date07/1990
DeductibilityContributions are deductible
FoundationOrganization which receives a substantial part of its support from a governmental unit or the general public
OrganizationCorporation
Exempt Organization StatusUnconditional Exemption
Tax Period01/2014
Assets$10,000,000 to $49,999,999
Income$10,000,000 to $49,999,999
Filing Requirement990 - Not required to file (all other)
Asset Amount$24,512,086
Amount of Income$25,671,171
Form 990 Revenue Amount$24,030,687
National Taxonomy of Exempt Entities (NTEE)Diseases, Disorders, Medical Disciplines: Nerve, Muscle and Bone Diseases


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Amount of income in 2014: $25,671,171
This organization: 

 $25,671,171
Other organizations performing similar types of work: 

 $3,750,328

Assets in 2014: $24,512,086
Amyotrophic Lateral Sclerosis Assn, National Office: 

 $24,512,086
Other organizations performing similar types of work: 

 $6,366,402

Expenses in 2014: $21,164,365
Amyotrophic Lateral Sclerosis Assn, National Office: 

 $21,164,365
Other organizations performing similar types of work: 

 $3,120,980

Income to expenses ratio in 2014: 1.2
This organization: 

 1.2
Other organizations performing similar types of work: 

 1.1

Expenses allocated to program services in 2002: 81.7%
This organization: 

 81.7%
Other organizations performing similar types of work: 

 81.7%

Number of employees in 2014: 73
This organization: 

 73
Other organizations performing similar types of work: 

 34

Employees paid over $100,000 in 2014: 26.0%
This organization: 

 26.0%
Other organizations performing similar types of work: 

 0.0%

Grants share in income in 2014: 97.9%
This organization: 

 97.9%
Other organizations performing similar types of work: 

 92.8%

Financial snapshot ($)

Revenue for 2014

Assets at the end of 2014

Functional expenses for 2014

Support schedule

Checklist
201220132014
Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)?YesYes
Is the organization required to complete Schedule B, Schedule of Contributors?YesYes
Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition to candidates for public office?NoNo
Did the organization engage in lobbying activities, or have a section 501(h) election in effect during the tax year?YesYes
Is the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues, assessments, or similar amounts as defined in Revenue Procedure 98-19?NoNo
Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts?NoNo
Did the organization receive or hold a conservation easement, including easements to preserve open space, the environment, historic land areas, or historic structures?NoNo
Did the organization maintain collections of works of art, historical treasures, or other similar assets?NoNo
Did the organization report an amount for escrow or custodial account liability; serve as a custodian or provide credit counseling, debt management, credit repair, or debt negotiation services?NoNo
Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanent endowments, or quasi-endowments?YesYes
Did the organization report an amount for land, buildings, and equipment?YesYes
Did the organization report an amount for investments-other securities that is 5% or more of its total assets?NoNo
Did the organization report an amount for investments-program related that is 5% or more of its total assets?NoNo
Did the organization report an amount for other assets that is 5% or more of its total assets?YesYes
Did the organization report an amount for other liabilities?NoYes
Did the organization's separate or consolidated financial statements for the tax year include a footnote that addresses the organization's liability for uncertain tax positions under FIN 48 (ASC 740)?YesYes
Did the organization obtain separate, independent audited financial statements for the tax year?YesYes
Was the organization included in consolidated, independent audited financial statements for the tax year?NoNo
Is the organization a school described in section 170(b)(1)(A)(ii)?NoNo
Did the organization maintain an office, employees, or agents outside of the United States?NoNo
Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, business, investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000 or more?YesYes
Did the organization report more than $5,000 of grants or other assistance to or for any foreign organization?YesYes
Did the organization report more than $5,000 of aggregate grants or other assistance to or for foreign individuals?NoNo
Did the organization report a total of more than $15,000 of expenses for professional fundraising services?YesYes
Did the organization report more than $15,000 total of fundraising event gross income and contributions?YesYes
Did the organization report more than $15,000 of gross income from gaming activities?NoNo
Did the organization operate one or more hospital facilities?NoNo
Did the organization attach a copy of its audited financial statements?NoNo
Did the organization report more than $5,000 of grants or other assistance to any domestic organization or domestic government?YesYes
Did the organization report more than $5,000 of grants or other assistance to or for domestic individuals?YesYes
Did the organization answer 'Yes' about compensation of the organization's current and former officers, directors, trustees, key employees, and highest compensated employees?YesYes
Did the organization have a tax-exempt bond issue with an outstanding principal amount of more than $100,000 as of the last day of the year, that was issued after December 31, 2002?NoNo
Did the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception?NoNo
Did the organization maintain an escrow account other than a refunding escrow at any time during the year to defease any tax-exempt bonds?NoNo
Did the organization act as an 'on behalf of' issuer for bonds outstanding at any time during the year?NoNo
Did the organization engage in an excess benefit transaction with a disqualified person during the year?NoNo
Is the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prior year, and that the transaction has not been reported on any of the organization's prior Forms 990 or 990-EZ?NoNo
Did the organization report any amount for receivables from or payables to any current or former officers, directors, trustees, key employees, highest compensated employees, or disqualified persons?NoNo
Did the organization provide a grant or other assistance to an officer, director, trustee, key employee, substantial contributor or employee thereof, a grant selection committee member, or to a 35% controlled entity or family member of any of these persons?NoNo
Was the organization a party to a business transaction with one of the following parties
A current or former officer, director, trustee, or key employee?NoNo
A family member of a current or former officer, director, trustee, or key employee?NoNo
An entity of which a current or former officer, director, trustee, or key employee (or a family member thereof) was an officer, director, trustee, or direct or indirect owner?NoNo
Did the organization receive more than $25,000 in non-cash contributions?YesYes
Did the organization receive contributions of art, historical treasures, or other similar assets, or qualified conservation contributions?NoNo
Did the organization liquidate, terminate, or dissolve and cease operations?NoNo
Did the organization sell, exchange, dispose of, or transfer more than 25% of its net assets?NoNo
Did the organization own 100% of an entity disregarded as separate from the organization under Regulations sections 301.7701-2 and 301.7701-3?NoNo
Was the organization related to any tax-exempt or taxable entity?NoYes
Did the organization have a controlled entity within the meaning of section 512(b)(13)?NoNo
Did the organization make any transfers to an exempt non-charitable related organization?NoNo
Did the organization conduct more than 5% of its activities through an entity that is not a related organization and that is treated as a partnership for federal income tax purposes?NoNo
Statements Regarding Other IRS Filings and Tax Compliance
201220132014
The number reported in Box 3 of Form 10965469
The number of Forms W-2G00
Did the organization comply with backup withholding rules for reportable payments to vendors and reportable gaming (gambling) winnings to prize winners?YesYes
The number of employees reported on Form W-3, Transmittal of Wage and Tax Statements, filed for the calendar year ending with or within the year covered by this return7173
Did the organization file all required federal employment tax returns?YesYes
Did the organization have unrelated business gross income of $1,000 or more during the year?NoNoNo
Has it filed a Form 990-T for this year?NoNo
At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, a financial account in a foreign country (such as a bank account, securities account, or other financial account)?NoNo
Was the organization a party to a prohibited tax shelter transaction at any time during the tax year?NoNo
Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transaction?NoNo
Did the organization file Form 8886-T?NoNo
Does the organization have annual gross receipts that are normally greater than $100,000, and did the organization solicit any contributions that were not tax deductible as charitable contributions?NoNo
Did the organization include with every solicitation an express statement that such contributions or gifts were not tax deductible?NoNo
Did the organization receive a payment in excess of $75 made partly as a contribution and partly for goods and services provided to the payor?YesYes
Did the organization notify the donor of the value of the goods or services provided?YesYes
Did the organization sell, exchange, or otherwise dispose of tangible personal property for which it was required to file Form 8282?NoNo
Did the organization receive any funds, directly or indirectly, to pay premiums on a personal benefit contract?NoNo
Did the organization, during the year, pay premiums, directly or indirectly, on a personal benefit contract?NoNo
If the organization received a contribution of qualified intellectual property, did the organization file Form 8899 as required?NoNo
If the organization received a contribution of cars, boats, airplanes, or other vehicles, did the organization file a Form 1098-C?YesYes
Did a donor advised fund maintained by the sponsoring organization have excess business holdings at any time during the year?NoNo
Did the sponsoring organization make any taxable distributions under section 4966?NoNo
Did the sponsoring organization make a distribution to a donor, donor advisor, or related person?NoNo
Initiation fees and capital contributions$0$0$0
Gross receipts for public use of club facilities $0$0$0
Gross income from members or shareholders$0$0$0
Gross income from other sources$0$0$0
Is the organization filing Form 990 in lieu of Form 1041?NoNo
The amount of tax-exempt interest received or accrued during the year$0$0
Is the organization licensed to issue qualified health plans in more than one state?NoNo
The amount of reserves the organization is required to maintain by the states in which the organization is licensed to issue qualified health plans$0$0
The amount of reserves on hand$0$0
Did the organization receive any payments for indoor tanning services during the tax year?NoNo
Has it filed a Form 720 to report these payments?NoNo
Compensation of Officers, Directors, Trustees, Key Employees, Highest Compensated Employees, and Independent Contractors
201220132014
Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees
Total reportable compensation from the organization$1,539,705$1,812,808
Total reportable compensation from related organizations$0$0
Total estimated amount of other compensation from the organization and related organizations$151,278$166,966
Total number of individuals who received more than $100,000 of reportable compensation from the organization1114
Total number of independent contractors who received more than $100,000 of compensation from the organization55
Statement of Revenue
201220132014
Total revenue$19,758,826$19,690,252$24,030,687
Contributions, Gifts, Grants and Other Similar Amounts$19,126,742$19,357,009$23,517,487
Program Service Revenue$39,475$46,000$56,675
900099$46,000$56,675
All other program service revenue$0$0
Other Revenue
Investment income (including dividends, interest, and other similar amounts)$119,967$162,972$179,732
Income from investment of tax-exempt bond proceeds$0$0$0
Royalties$0$11,250$0
Net rental income$0$0$0
Net gain/loss from sales of assets other than inventory$163,256$45,894$260,868
Gross amount from sales of assets other than inventory (Securities / Other)$2,193,407 / $0$1,534,182 / $0$1,867,893 / $0
Less: cost or other basis and sales expenses (Securities / Other)$2,030,151 / $0$1,488,288 / $0$1,607,025 / $0
Gain or (loss) (Securities / Other)$163,256 / $0$45,894 / $0$260,868 / $0
Net income/loss from fundraising events$-56,159$-25,756$0
Gross income from fundraising events$5,793$7,400$33,459
Less: direct expenses$61,952$33,156$33,459
Net income/loss from gaming activities$0$0$0
Net income/loss from sales of inventory$0$0$0
Miscellaneous Revenue$365,545$92,883$15,925
900099$62,722$15,925
All other revenue$0$0
Statement of Functional Expenses
201220132014
Total functional expenses$15,824,207$19,796,581$21,164,365
Grants and other assistance to domestic organizations and domestic governments$6,104,600$6,231,235
Grants and other assistance to domestic individuals$1,863$6,974
Grants and other assistance to foreign organizations, foreign governments, and foreign individuals$736,634$848,518
Benefits paid to or for members$0$0
Compensation of current officers, directors, trustees, and key employees$1,032,847$1,068,398$1,313,769
Compensation not included above, to disqualified persons$0$0
Other salaries and wages$3,185,358$3,260,161$3,610,724
Pension plan accruals and contributions$145,627$171,082
Other employee benefits$313,366$356,385
Payroll taxes$347,373$351,164$391,515
Fees for services (non-employees)
Management$1,691,174$0
Legal$11,399$14,233
Accounting$44,725$55,730
Lobbying$36,717$106,721
Professional fundraising services$298,692$709,621$467,822
Investment management fees$0$0
Other$0$3,420,747
Advertising and promotion$449,292$456,306
Office expenses$343,579$297,451
Information technology$0$14,336
Royalties$0$0
Occupancy$485,933$512,312
Travel$1,171,175$1,348,628
Payments of travel or entertainment expenses for any federal, state, or local public officials$0$0
Conferences, conventions, and meetings$0$0
Interest$0$0
Payments to affiliates$0$0
Depreciation, depletion, and amortization$85,124$103,087
Insurance$0$0
Other expenses$1,005,480$1,110,321
Other expenses$1,005,327$179,204
Other expenses$341,156$120,137
Other expenses$268,146$27,128
Balance Sheet
201220132014
Total assets$20,256,339$20,059,969$24,512,086
Cash - non-interest-bearing$5,525,946$8,998,024
Savings and temporary cash investments$1,776,766$1,427,846
Pledges and grants receivable, net$3,933,182$1,541,569
Accounts receivable, net$0$0
Loans and other receivables from current and former officers, directors, trustees, key employees, and highest compensated employees$0$0
Loans and other receivables from other disqualified persons, persons described in section 4958(c)(3)(B), and contributing employers and sponsoring organizations of section 501(c)(9) voluntary employees' beneficiary organizations$0$0
Notes and loans receivable, net$0$0
Inventories for sale or use$0$0
Prepaid expenses and deferred charges$230,418$262,525
Land, buildings, and equipment: cost or other basis$222,142$235,614
Investments - publicly traded securities$7,314,287$7,778,069
Investments - other securities$0$0
Investments - program-related$0$0
Intangible assets$0$0
Other assets$1,057,228$4,268,439
Total liabilities$2,760,956$2,557,775$4,111,696
Accounts payable and accrued expenses$2,377,441$2,242,302
Grants payable$180,334$1,002,005
Deferred revenue$0$0
Tax-exempt bond liabilities$0$0$0
Escrow or custodial account liability$0$0
Loans and other payables to current and former officers, directors, trustees, key employees, highest compensated employees, and disqualified persons$0$0
Secured mortgages and notes payable to unrelated third parties$0$0$0
Unsecured notes and loans payable to unrelated third parties$0$0$0
Other liabilities (including federal income tax, payables to related third parties, and other liabilities)$0$867,389
Total net assets or fund balances$17,495,383$17,502,194$20,400,390
Unrestricted net assets$8,317,870$8,312,123
Temporarily restricted net assets$8,260,444$11,169,117
Permanently restricted net assets$923,880$919,150
Capital stock or trust principal, or current funds$0$0
Paid-in or capital surplus, or land, building, or equipment fund$0$0
Retained earnings, endowment, accumulated income, or other funds$0$0$0
Reason for Public Charity Status (for 2014)
The organization is not a private foundation because it is:An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi)
Number of organizations supported0
Sum of amounts of support$0
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi) (for 2010 - 2014)
2010 - 2014 Total
Public Support$90,273,608
Subtotal Support$94,362,995
Gifts, grants, contributions, and membership fees received$94,362,995
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf$0
The value of services or facilities furnished by a governmental unit to the organization without charge$0
The portion of total contributions by each person (other than a governmental unit or publicly supported organization) that exceeds 2% of the total support$4,089,387
Total Support$95,110,283
Public Support$94,362,995
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources$607,067
Net income from unrelated business activities, whether or not the business is regularly carried on$0
Other income. Do not include gain or loss from the sale of capital assets$140,221
Gross receipts from related activities, etc.$211,052
Revenue, Expenses, and Changes in Net Assets or Fund Balances
200020012002
Total revenue$8,756,000$9,937,942$11,154,637
Contributions, gifts, grants, and similar amounts received$8,230,390$9,518,871$10,845,379
Contributions to donor advised funds
Direct public support$5,424,503$6,276,614$7,516,323
Indirect public support$2,805,887$3,242,257$3,329,056
Government contributions (grants)$0$0$0
Program service revenue including government fees and contracts$0$0$0
Membership dues and assessments$0$0$0
Interest on savings and temporary cash investments$99,723$71,315$24,924
Dividends and interest from securities$354,708$272,529$201,121
Net rental income or (loss)$0$0$0
Gross rents$0$0$0
Less: rental expenses$0$0$0
Other investment income$0$0$0
Gain or (loss) from sales of assets other than inventory$0$0$0
Gross amount from sales of assets other than inventory$0$0$0
Less: cost or other basis and sales expenses$0$0$0
Net income or (loss) from special events and activities$0$0$0
Gross revenue$0$0$0
Less: direct expenses other than fundraising expenses$0$0$0
Gross profit or (loss) from sales of inventory$0$0$0
Gross sales of inventory, less returns and allowances$0$0$0
Less: cost of goods sold$0$0$0
Other revenue$71,179$75,227$83,213
Total expenses$7,292,745$9,402,414$11,114,461
Program services$5,355,948$7,125,823$9,076,983
Management and general$547,812$668,343$684,463
Fundraising$1,388,985$1,608,248$1,353,015
Payments to affiliates$0$0$0
Net assets or fund balances at end of year$10,047,109$10,280,374$10,230,554
Excess or (deficit) for the year$1,463,255$535,528$40,176
Net assets or fund balances at beginning of year$7,621,384$10,046,809$10,280,374
Other changes in net assets or fund balances$962,470$-301,963$-89,996
Statement of Functional Expenses (for 2002)
TotalProgram servicesManagement and generalFundraising
Total functional expenses$11,114,461$9,076,983$684,463$1,353,015
Grants paid from donor advised funds
Other grants and allocations$5,586,206
Specific assistance to individuals$0
Benefits paid to or for members$0
Compensation of current officers, directors, key employees, etc.$251,233$143,232$100,124$7,877
Compensation of former officers, directors, key employees, etc.
Compensation and other distributions, not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B)
Salaries and wages of employees not included above$2,016,913$1,293,522$277,827$445,564
Pension plan contributions not included above$57,331$36,367$9,671$11,293
Employee benefits not included above$223,848$139,178$45,048$39,622
Payroll taxes$201,191$127,621$33,939$39,631
Professional fundraising fees$100,271$0$0$100,271
Accounting fees$22,819$0$22,819$0
Legal fees$11,674$0$11,674$0
Supplies$32,820$22,074$5,892$4,854
Telephone$74,278$63,484$4,072$6,722
Postage and shipping$303,958$126,734$7,905$169,319
Occupancy$263,989$181,491$46,152$36,346
Equipment rental and maintenance$386$8$0$378
Printing and publications$715,557$332,139$22,161$361,257
Travel$443,561$403,106$6,947$33,508
Conferences, conventions, and meetings$127,079$127,079$0$0
Interest$0$0$0$0
Depreciation, depletion, etc.$58,415$32,712$11,683$14,020
Other expenses not covered above$622,932$462,030$78,549$82,353
Balance Sheets
200020012002
Total assets$10,710,686$11,024,430$12,199,241
Cash - non-interest-bearing$300$300$500
Savings and temporary cash investments$2,890,947$2,287,126$3,271,029
Accounts receivable less allowance for doubtful accounts$0$0$0
Pledges receivable less allowance for doubtful accounts$2,278,079$3,485,273$4,668,450
Grants receivable$0$0$0
Receivables from current and former officers, directors, trustees, and key employees$0$0$0
Receivables from other disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B)
Other notes and loans receivable less allowance for doubtful accounts$0$0$0
Inventories for sale or use$0$0$0
Prepaid expenses and deferred charges$259,240$32,434$20,630
Investments - publicly-traded securities
Investments - other securities$5,114,690$5,035,975$4,096,660
Investments - land, buildings, and equipment less accumulated depreciation$0$0$0
Investments - other$0$0$0
Land, buildings, and equipment less accumulated depreciation$123,819$147,716$114,681
Other assets, including program-related investments$43,611$35,606$27,291
Total liabilities$663,577$744,056$1,968,687
Accounts payable and accrued expenses$524,969$588,521$452,634
Grants payable$138,608$155,535$1,516,053
Deferred revenue$0$0$0
Loans from officers, directors, trustees, and key employees$0$0$0
Tax-exempt bond liabilities$0$0$0
Mortgages and other notes payable$0$0$0
Other liabilities$0$0$0
Total liabilities and net assets/fund balances$10,710,686$11,024,430$12,199,241
Total net assets or fund balances$10,047,109$10,280,374$10,230,554
Reconciliation of Revenue per Audited Financial Statements With Revenue per Return
200020012002
Total revenue$8,756,000$9,937,942$11,154,637
Total revenue, gains, and other support per audited financial statements$8,835,970$9,869,895$11,064,641
Other expenses$79,970$-68,047$-89,996
Net unrealized gains on investments$79,970$-68,047$-89,996
Donated services and use of facilities$0$0$0
Recoveries of prior year grants$0$0$0
Other$0$0$0
Other revenue$0$0$0
Investment expenses$0$0$0
Other$0$0$0
Reconciliation of Expenses per Audited Financial Statements With Expenses per Return
200020012002
Total expenses$7,292,745$9,402,414$11,114,461
Total expenses and losses per audited financial statements$7,292,745$9,402,414$11,114,461
Other revenue$0$0$0
Donated services and use of facilities$0$0$0
Prior year adjustments$0$0$0
Losses$0$0$0
Other$0$0$0
Other expenses$0$0$0
Investment expenses$0$0$0
Other$0$0$0
Current Officers, Directors, Trustees, and Key Employees
Total number of officers, directors, and trustees permitted to vote on organization business at board meetings0
Are any officers, directors, trustees, or key employees listed in Form 990, Part V-A, or highest compensated employees listed in Schedule A, Part I, or highest compensated professional and other independent contractors listed in Schedule A, Part II-A or II-B, related to each other through family or business relationships?
Do any officers, directors, trustees, or key employees listed in Form 990, Part V-A, or highest compensated employees listed in Schedule A, Part I, or highest compensated professional and other independent contractors listed in Schedule A, Part II-A or II-B, receive compensation from any other organizations, whether tax exempt or taxable, that are related to the organization?
Does the organization have a written conflict of interest policy?
Other Information
Did the organization have unrelated business gross income of $1,000 or more during the year covered by this return, and has it filed a tax return on Form 990-T for this year?No
Was there a liquidation, dissolution, termination, or substantial contraction during the year?No
Is the organization related (other than by association with a statewide or nationwide organization) through common membership, governing bodies, trustees, officers, etc., to any other exempt or nonexempt organization?No
Direct and indirect political expenditures$0
Did the organization file Form 1120-POL for this year?No
Were substantially all dues nondeductible by members?
Did the organization make only in-house lobbying expenditures of $2,000 or less?
Dues, assessments, and similar amounts from members$0
Section 162(e) lobbying and political expenditures$0
Aggregate nondeductible amount of section 6033(e)(1)(A) dues notices$0
Taxable amount of lobbying and political expenditures$0
Does the organization elect to pay the section 6033(e) tax on the amount above?
If section 6033(e)(1)(A) dues notices were sent, does the organization agree to add the amount above to its reasonable estimate of dues allocable to nondeductible lobbying and political expenditures for the following tax year?
Initiation fees and capital contributions$0
Gross receipts for public use of club facilities$0
At any time during the year, did the organization, directly or indirectly, own a controlled entity within the meaning of section 512(b)(13)?
Amount of tax imposed on the organization during the year under: section 4911$0
Amount of tax imposed on the organization during the year under: section 4912$0
Amount of tax imposed on the organization during the year under: section 4955$0
Did the organization engage in any section 4958 excess benefit transaction during the year or did it become aware of an excess benefit transaction from a prior year?No
Amount of tax imposed on the organization managers or disqualified persons during the year under sections 4912, 4955, and 4958$0
Amount of tax above, reimbursed by the organization$0
At any time during the tax year, was the organization a party to a prohibited tax shelter transaction?
Did the organization acquire a direct or indirect interest in any applicable insurance contract?
Did the supporting organization, or a fund maintained by a sponsoring organization, have excess business holdings at any time during the year?
Number of employees employed in the pay period that includes March 12, 200636
Analysis of Income-Producing Activities (for 2002)
Unrelated business incomeExcluded by section 512, 513, or 514Related or exempt function income
Business codeAmountExclusion codeAmount
Total$0$226,045$83,213
Program service revenue
Program service revenue 1000000$000$0$0
Program service revenue 2000000$000$0$0
Program service revenue 3000000$000$0$0
Program service revenue 4000000$000$0$0
Program service revenue 5000000$000$0$0
Medicare/Medicaid payments000000$000$0$0
Fees and contracts from government agencies000000$000$0$0
Membership dues and assessments000000$000$0$0
Interest on savings and temporary cash investments000000$0Dividends, interest, payments with respect to securities loans, annuities, income from notional principal contracts, loan commitment fees, and other substantially similar income from ordinary and routine investments excluded by section 512(b)(1)$24,924$0
Dividends and interest from securities000000$0Dividends, interest, payments with respect to securities loans, annuities, income from notional principal contracts, loan commitment fees, and other substantially similar income from ordinary and routine investments excluded by section 512(b)(1)$201,121$0
Net rental income or (loss) from real estate
debt-financed property000000$000$0$0
not debt-financed property000000$000$0$0
Net rental income or (loss) from personal property000000$000$0$0
Other investment income000000$000$0$0
Gain or (loss) from sales of assets other than inventory000000$000$0$0
Net income or (loss) from special events000000$000$0$0
Gross profit or (loss) from sales of inventory000000$000$0$0
Other revenue000000$000$0$83,213
Information Regarding Taxable Subsidiaries and Disregarded Entities (for 2002)
EIN of corporation, partnership, or disregarded entityPercentage of ownership interestTotal incomeEnd-of-year assets
0%$0$0
0%$0$0
0%$0$0
0%$0$0
Compensation of the Five Highest Paid Employees Other Than Officers, Directors, and Trustees (for 2002)
CompensationContributions to employee benefit plans & deferred compensationExpense account and other allowances
$136,000$8,732$0
$88,667$7,991$0
$88,000$8,981$0
$88,000$12,713$0
$84,667$10,480$0
Total number of other employees paid over $50,00011
Statements About Activities (for 2002)
Expenses paid or incurred in connection with the lobbying activities$196,015
Did the organization receive or hold an easement for conservation purposes, including easements to preserve open space, the environment, historic land areas or historic structures?
Did the organization provide credit counseling, debt management, credit repair, or debt negotiation services?
Did the organization maintain any donor advised funds?
Did the organization make any taxable distributions under section 4966?
Did the organization make a distribution to a donor, donor advisor, or related person?
The total number of donor advised funds owned at the end of the tax year
The aggregate value of assets held in all donor advised funds owned at the end of the tax year
The total number of separate funds or accounts owned at the end of the tax year (excluding donor advised funds included above) where donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts
The aggregate value of assets held in all funds or accounts included above at the end of the tax year
Reason for Non-Private Foundation Status
The organization is not a private foundation because it isOrganization that receives a substantial part of its support from a governmental unit or from the general public
Support Schedule
199920002001
Total$6,968,135$7,836,071$8,699,715
Gifts, grants, and contributions received$6,627,947$7,310,461$8,294,315
Membership fees received$0$0$0
Gross receipts from admissions, merchandise sold or services performed, or furnishing of facilities in any activity that is related to the organization's charitable, etc., purpose$0$0$0
Gross income from interest, dividends, amounts received from payments on securities loans (section 512(a)(5)), rents, royalties, and unrelated business taxable income (less section 511 taxes) from businesses acquired by the organization after June 30, 1975$272,190$454,431$343,844
Net income from unrelated business activities not included above$0$0$0
Tax revenues levied for the organization's benefit and either paid to it or expended on its behalf$0$0$0
The value of services or facilities furnished to the organization by a governmental unit without charge. Do not include the value of services or facilities generally furnished to the public without charge$0$0$0
Other income$67,998$71,179$61,556
Lobbying Expenditures by Electing Public Charities (for 2002)
Total exempt purpose expenditures$9,076,983
Total lobbying expenditures$196,015
Total lobbying expenditures to influence public opinion (grassroots lobbying)$15,275
Total lobbying expenditures to influence a legislative body (direct lobbying)$180,740
Other exempt purpose expenditures$8,880,968
Lobbying nontaxable amount$603,849
Grassroots nontaxable amount$150,962
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Organizations performing similar types of work
IdNameAddressStateEstablishedTotal Income
1National Multiple Sclerosis Society733 3rd Ave Fl 3, New York, NY 10017-3211NY1947-10$122,069,551
2Amyotrophic Lateral Sclerosis Assn, National Office1275 K St Nw Ste 250, Washington, DC 20005-6823DC1990-07$25,671,171
3Childrens Sport Medicine Foundation Inc300 Longwood Ave, Boston, MA 02115-5737MA1989-11$22,500,290
4Multiple Sclerosis Association Of America Inc706 Haddonfield Road, Cherry Hill, NJ 08002-2652NJ1971-05$10,226,625
5National Multiple Sclerosis Society, Greater North Jersey Chapter1 Kalisa Way, Paramus, NJ 07652-3516NJ1949-06$3,750,328
6The Oak Clinic3875 Embassy Pkwy, Akron, OH 44333-8330OH2001-03$2,613,062
7Boyer Childrens Clinic1850 Boyer Ave E, Seattle, WA 98112-2922WA1986-09$1,617,990
8National Multiple Sclerosis Society, Greater Carolinas Chapter9771 Sthrn Pine Blvd Ste A, Charlotte, NC 28273-5505NC1947-10$3,174,237
9Stand Among Friends Inc777 Glades Road Bldg Nu-84 No 120, Boca Raton, FL 33431-6424FL1992-10$1,173,495
10One Step Closer Therapeutic Riding15770 Foothill Ave, Morgan Hill, CA 95037-9512CA2007-06$97,281
11Kidnoggin Inc502 W 6th St, Tulsa, OK 74119-1016OK2008-10$0
12Lakeside Therapeutic Riding Center3635 Auburn Folsom Blvd, Loomis, CA 95650CA2007-05$0
13Motion For LifeP O Box, Red Rock, TX 78662TX2007-07$0
Number of organizations performing similar types of work
California2
District of Columbia1
Florida1
Massachusetts1
North Carolina1
New Jersey2
New York1
Ohio1
Oklahoma1
Texas1
Washington1
Total13
20 biggest affiliated organizations
AffiliationNameAddressStateEstablishedTotal Income
CentralAmyotrophic Lateral Sclerosis Assn, National Office1275 K St Nw Ste 250, Washington, DC 20005-6823DC1990-07$25,671,171
SubordinateAmyotrophic Lateral Sclerosis Association, Greater Philadelphia Chapter321 Norristown Rd Ste 260, Ambler, PA 19002-2755PA1990-07$5,690,608
SubordinateAmyotrophic Lateral Sclerosis Association, Greater New York Chapter42 Broadway Ste 1724, New York, NY 10004-3873NY1990-07$4,349,675
SubordinateAmyotrophic Lateral Sclerosis Association, Als Association Golden West ChapterPO BOX 565, Agoura Hills, CA 91376-0565CA1990-07$3,908,252
SubordinateAmyotrophic Lateral Sclerosis Association, Minnesota North Dakota South DakotaSte 105, Minneapolis, MN 55401MN1990-07$3,404,572
SubordinateAmyotrophic Lateral Sclerosis Association, Jim Catfish Hunter Chapter4 N Blount St 2nd Fl, Raleigh, NC 27601-1068NC1990-07$2,748,257
SubordinateAmyotrophic Lateral Sclerosis Association, Dc Md Va Chapter7507 Standish Pl, Rockville, MD 20855-2731MD1990-07$2,652,742
SubordinateAmyotrophic Lateral Sclerosis Association, The Chosen Ones Mc Llc3242 Parkside Center Cir, Tampa, FL 33619-0907FL1990-07$2,554,086
SubordinateAmyotrophic Lateral Sclerosis Association, Mid-America Chapter6950 Squibb Rd Ste 210, Mission, KS 66202-3260KS1990-07$1,962,525
SubordinateAmyotrophic Lateral Sclerosis Association, Als Association Texas Chapter8600 Wurzbach Rd Ste 700, San Antonio, TX 78240-4332TX$1,818,669
SubordinateAmyotrophic Lateral Sclerosis Association, Oregon And Sw Washington700 Ne Multnomah St Ste 1180, Portland, OR 97232-4124OR1990-07$1,562,444
SubordinateAmyotrophic Lateral Sclerosis Association, St Louis Regional Chapter2258 Weldon Pkwy, Saint Louis, MO 63146-3206MO1990-07$1,536,658
SubordinateAmyotrophic Lateral Sclerosis Association, Connecticut Chapter4 Oxford Rd Ste D4, Milford, CT 06460-3851CT1990-07$1,469,303
SubordinateAmyotrophic Lateral Sclerosis Association, Als Association Wisconsin Chapter3333 N Mayfair Rd Ste 213, Wauwatosa, WI 53222-3219WI1990-07$1,362,614
SubordinateAmyotrophic Lateral Sclerosis Association, Greater Bay Area Chapter1 Embarcadero Ctr Ste 1530, San Francisco, CA 94111-3626CA1990-07$1,353,384
SubordinateAmyotrophic Lateral Sclerosis Association, Evergreen Chapter19115 68th Ave S Ste H105, Kent, WA 98032-2110WA1990-07$1,281,786
SubordinateAmyotrophic Lateral Sclerosis Association, Western Pennsylvania Chapter416 Lincoln Ave, Millvale, PA 15209-2670PA1990-07$1,080,078
SubordinateAmyotrophic Lateral Sclerosis Association, Central & Southern Ohio Chapter1170 Old Henderson Rd Ste 221, Columbus, OH 43220-7602OH1990-07$1,062,624
SubordinateAmyotrophic Lateral Sclerosis Association, Massachusetts Chapter315 Norwood Park S Ste 1, Norwood, MA 02062-4681MA1990-07$1,017,073
SubordinateAmyotrophic Lateral Sclerosis Association, Tennessee Chapter4825 Trousdale Dr Ste 107, Nashville, TN 37220-1352TN1990-07$944,110
Number of affiliated organizations
Alabama1
Arkansas1
Arizona1
California5
Colorado1
Connecticut1
District of Columbia1
Florida1
Georgia1
Iowa1
Illinois1
Indiana1
Kansas1
Kentucky1
Louisiana1
Massachusetts1
Maryland1
Michigan1
Minnesota1
Missouri1
North Carolina1
New Hampshire1
New Mexico1
New York3
Ohio2
Oregon1
Pennsylvania2
Rhode Island1
South Carolina1
Tennessee1
Texas3
Utah1
Washington1
Wisconsin1
Total44

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